Jonathan Carey "Champion for the Disabled" Born September 12,1993 Killed by caregivers on February 15,2007
Speaker Carl Heastie gave his word to bring the 911 Civil Rights bill to protect and ensure equal rights for people with disabilities to the floor for a vote
Speaker Heastie has the opportunity to finally end this deadly discrimination and save countless precious lives and that is what I believe he will do.”
— Michael Carey
DELMAR, NEW YORK, UNITED STATES, June 20, 2017 /EINPresswire.com/ -- Pressures from Governor Cuomo and his mental health agencies that are providing sub-standard and unsafe care and services are great upon Speaker Heastie. I believe that Speaker Heastie will honor his word to 1,000,000 New Yorkers with disabilities and their families and today bring the 911 Civil Rights bill to the floor of the New York State Assembly for a vote as he promised.
Two years ago Speaker Heastie when asked to bring the 911 Civil Rights Bill to the floor for a vote to finally ensure equal access for people with disabilities living outside of their family home to immediate 911 first responder medical and police services he said you need to get 76 Assembly members signed on. Why, was asked of him then, 911 emergency first responder call systems were put in place decades ago to protect everyone I thought, which includes people with disabilities, and this was being denied New Yorkers with disabilities. Speaker Heastie’s response was you have to get the members signed on. So for the next two years that is exactly what Michael Carey did, working what seemed to be night and day to accomplish something that almost everyone say’s “you got to be kidding me” in a strong response after they are told that there is no law requiring mandated reporters and those caring for people that cannot care for themselves to call 911 if the person with a disability is choking to death, in any type of medical emergency, stopped breathing or a victim of a physical or sexual assault crime. The fact of the matter is that people with disabilities living in New York State are dramatically treated unequally and are being discriminated against. Speaker Heastie has the opportunity to finally end this deadly discrimination and save countless precious lives and that is what I believe he will do.
People with disabilities living care facilities and group homes throughout New York State are in grave danger due to the fact that they in most cases will never receive 911 medical or police first responder assistance or services. Treating people with disabilities unequally is Discrimination in Civil Rights.
Disability Rights New York (DRNY) the current federal watchdog agency has documented that the number one, two and three KNOWN reasons for what are being called "untimely" deaths, but really negligent deaths, all surround medical emergencies and NOT calling 911.
What is going on now throughout New York State is deadly discrimination. The 911 Civil Rights Bill ends this egregious and gross injustice that took young Jonathan Carey’s life and countless others. Speaker Heastie must not waver but stand up and speak up against such injustices. The CRITICAL 911 Civil Rights Bill must be brought to the floor for a vote today - three quarters of ALL New York State legislators in both the NYS Senate and Assembly are signed on as co-sponsors to this history making, lifesaving and discrimination ending 911 Civil Rights Bill.
This 911 Civil Rights Bill is a matter of "Life or Death" for countless innocent children and adults with disabilities. The damages are irreparable. Please review this brand new 30 second YouTube video titled 911 is a Basic Civil Right -https://youtu.be/MjWUyxJe7U8
911 is a Basic Civil RIGHT
youtu.be
In the Concourse of the Empire State Plaza in Albany, New York there is a huge picture of Dr. Martin Luther King Jr. at a memorial in his honor. He is standing at a podium or pulpit and here are his words directly quoted next to that picture "Injustice anywhere is a threat to justice everywhere."
What do you think Dr. Martin Luther King Jr. would say about our most vulnerable people with disabilities not being provided their most basic equal right to 911 medical and police assistance and services? What do you think Dr. Martin Luther King Jr. would say about the outright denial of providing this "specific group of people" which cannot care for themselves or defend themselves their NYS and 14th Amendment US Constitutional Rights to equal protection of laws that are promised everyone? People with disabilities are equal in God's eyes and are supposed to be in ours as well. Let's together end a pattern of horrific discrimination of bypassing and circumventing the 911 call systems for the disabled that has cost so many precious innocent and extremely vulnerable children and adults their lives.
The 911 Civil Rights Bill is a history making REFORM bill that will immediately begin saving many lives of people with special needs. The Justice Center put in place by Governor Andrew Cuomo is a gross failure and is NOT protecting people with special needs, but the exact opposite. The vast majority of crimes and deaths of people with disabilities occurring in the agencies the governor controls are purposefully kept from all local authorities which include local police, County elected District Attorney’s and even Medical Examiners and Coroners as if people with disabilities are not equal human beings. This discrimination and these injustices in New York State is a threat to justice everywhere. The 911 Civil Rights bill will bring great changes and is true righteousness. I believe my precious son Jonathan suffered and died for this cause and for his friends with disabilities, to help us all bring about justice in New York State and hopefully everywhere throughout our great country of the United States of America.
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Heart patients in Utah and the Intermountain West who suffer from a cardiovascular genetic disorder known as hypertrophic cardiomyopathy (HCM) now have immediate access in Utah to one of only 25 national centers of excellence that specialize in care for this disease.
This is a great honor for our program, and wonderful validation of the work that we’re doing to provide the very best care to families and patients affected by HCM.”
— Kia Afshar, MD, Intermountain Medical Center Heart Institute
SALT LAKE CITY , UTAH, USA , June 20, 2017 /EINPresswire.com/ -- Heart patients in Utah and the Intermountain West who suffer from a cardiovascular genetic disorder known as hypertrophic cardiomyopathy (HCM) now have immediate access in Utah to one of only 25 national centers of excellence that specialize in care for this disease.
Intermountain Medical Center Heart Institute’s new Hypertrophic Cardiomyopathy Center has been designated a National Center of Excellence by the Hypertrophic Cardiomyopathy Association (HCMA), joining just two dozen elite programs in the nation to earn this prestigious certification.
The center, which treats adults at Intermountain Medical Center and children at Primary Children’s Hospital, is the only HCMA-recognized center of excellence in Utah and the Intermountain West.
“This is a great honor for our program, and wonderful validation of the work that we’re doing to provide the very best care to families and patients affected by HCM,” said Kia Afshar, MD, director of the Hypertrophic Cardiomyopathy Center at the Intermountain Medical Center Heart Institute.
“We have assembled a group of specialists with expertise and success in treating patients with HCM from throughout the country. This team effort allows us to provide the full range of services that HCM patients in Utah and throughout the Intermountain West need,” Dr. Afshar noted.
The center’s care team members include experts in both adult and pediatric electrophysiology, interventional cardiology, cardiac surgery, advanced cardiac imaging, pediatric heart failure, and transplant cardiology. The center also offers adult and pediatric genetic counseling, social work services, nutrition counseling, pharmacy services, and financial support.
The HCMA works to improve the lives of those with hypertrophic cardiomyopathy, a condition that affects one in every 500 Americans, by preventing untimely deaths and advancing global understanding. The HCMA supports education and advocacy throughout the United States, and works to advance research, understanding and enhance care to patients affected by HCM.
Hypertrophic cardiomyopathy is a heart disease that can cause a number of complications, including sudden death. Hypertrophy means “thickening,” and that’s what happens in cases of hypertrophic cardiomyopathy. Enlargement of cells in the heart leads to thickening of the walls of the ventricles, the heart’s lower chambers. HCM results from a genetic mutation and can lead to symptoms similar to heart failure such as shortness of breath, inability to tolerate exercise, chest pain, dizziness, and fainting.
Frequently, this thickening occurs in the septum, the wall between those chambers, and can reduce or block the flow of blood from the left ventricle to the aorta, creating what’s called hypertrophic obstructive cardiomyopathy. Two-thirds of hypertrophic cardiomyopathy patients develop such an obstruction, according to Dr. Afshar, who’s a heart failure and transplant cardiologist.
“The ventricle is thick and causes the heart to have an abnormal shape and relationship with the mitral valve that can then cause the mitral valve to obstruct blood flow leaving the heart. These people become very short of breath and sometimes have chest pain or dizziness with exertion,” he said.
Hypertrophic cardiomyopathy may also potentially trigger ventricular tachycardia, an erratic heart rhythm that can cause sudden death. Because a high percentage of cases are genetic and symptoms are so varied, if there are symptoms at all, a diagnosis means an individual’s first-degree relatives —parents, children, and siblings — should be screened for the disease, Dr. Afshar said.
Treatments for hypertrophic cardiomyopathy vary, depending on factors including the symptoms and severity of the disease. Some patients can be managed with medications alone but others may need more invasive procedures, such as surgery to reduce the thickness of the septum or septal ablation procedure that causes the thickened wall to shrink.
In 10 to 15 percent of cases, patients may receive a defibrillator to protect against sudden cardiac death. The device is sometimes implanted as a preventive tool in patients with a family history of sudden death and other risk factors for malignant arrhythmias. In end-stage cases, patients whose hearts have become weak due to hypertrophic cardiomyopathy may require a heart transplant.
A center like Intermountain Medical Center Heart Institute’s offers advantages in diagnosis, treatment, and genetic testing, said Dr. Afshar.
Hypertrophic cardiomyopathy is rare enough that a family physician or general cardiologist may not see many patients with the disease. The center’s specialized physicians, however, see it often, talk to other experts about it, stay updated on treatments and research, and are always looking for new and better ways to treat patients suffering from HCM. That specialization improves the quality and consistency of care, said Dr. Afshar.
The new Intermountain Medical Center HCM program offers unique research opportunities, including collection of DNA samples and actively follow consenting HCM patients and family members seen at the center. These samples are housed in Intermountain Healthcare’s active registry, called INSPIRE, which already has over 32,000 biological samples from consenting patients diagnosed with any healthcare-related conditions.
HCM patients and families will also be tracked in our extensive genealogy database of family records, called pedigrees, for over 23 million individuals. Family pedigrees are matched with medical record information from the Intermountain Healthcare system.
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SALT LAKE CITY, UTAH, USA, June 19, 2017 /EINPresswire.com/ -- Intermountain Healthcare's Marc Harrison, MD, president and CEO, has been named among Modern Healthcare's "50 Most Influential Physician Executives and Leaders." Dr. Harrison is listed nationally at #10 in the 2017 rankings.
According to the magazine, “The program honors physicians working in all sectors of the healthcare industry who are steering their organizations and the healthcare delivery system through dynamic, challenging times. These physicians stand out for the scope of their executive responsibilities, personal achievements, innovation and commitment to their communities.”
The ranking began with nominations, which were narrowed to a final ballot of 150 physician executives who received the most nominations. The final 50 honorees were chosen by readers and the senior editors of Modern Healthcare and Modern Physician magazines for their leadership in the varied sectors of the industry, whether provider organizations, government agencies, associations, insurers or supplier companies. The complete list can be viewed here: 50 Most Influential Physician Executives 2017.
Intermountain Healthcare is a Utah-based not-for-profit system of 22 hospitals, 180 clinics, a Medical Group with about 1,500 employed physicians and advanced practitioners, a health plans group called SelectHealth, and other medical services. Intermountain is widely recognized as a leader in transforming healthcare through high quality and sustainable costs. For more information, visit www.intermountainhealthcare.org.
